HCU Updates

Clinical Guidelines for CBS Deficiency

The European Guidelines for the diagnosis and management of cystathionine beta-syntha…

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Expression of Interest – Patient-Expert Meeting 2017

We are now calling for expression of interest for the 2017 Patient-Expert Meeting. …

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Orphan Europe’s New Infographic

Oprhan Europe’s HCU infographic video for Healthcare Professionals provides an over…

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Events

26th February 2017
New Zealand, New Zealand
HCU Network Australia

Assemble the hiking boots and get ready to take on what has been described as "the finest walk in the world". Experience New Zealand's Milford Sound next World Rare Disease Day as …

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Videos

View HCU YouTube Channel