Media

HCU in the media

media

Press Release: Rare Disease Day Prague 2016

The Recordati Rare Disease Foundation supports the 1st Patient & Expert Meet in Prague on Rare Disease Day, 29th February 2016. The Patient & Expert Meet will bring together key stakeholders, such as patients, clinicians and researchers, from across the world to help increase awareness and improve education about homocystinuria, methylation defects and folate defects.…

Serving diet help

Most people with the disease can’t eat meat, dairy, bread or fish, but their little bodies need protein to grow. – Tara Morrison MOST parents keep an eye on what their children eat. Picture: CARMELA ROCHE Connor, 6, and Lincoln, 2, with mum Tara Morrison.But when your two boys could die if they eat meat,…

Runners step up fight against infant disorder

WHEN Castle Hill’s Tara Morrison and her team of runners start the 9km course in the Sydney Running Festival, it will be a significant moment for the group. Picture: PETER KELLY Tara Morrison trains for the running festival. Mrs Morrison and her husband Ryan started their charity HCU Network Australia a couple of months ago,…